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Hints on how to handle a STROKE - written by a survivor not a victim

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Downloads - Brought to you by Karen Wisse, compiled from suggestions from myself and other stroke survivors. Good luck to you and get on with smiling and being free from your former struggles - yes enjoy your new struggles, you've got the time now. Be loved and let people in and let them help with love not pity.


 

Emotions run high.

It would be typical for me to turn to jelly if someone asks me a question regarding my future, to me that means where will I live and how will I pay for it. I can't answer these questions yet.

I will cry if left alone in desolation, I need help to find solutions and this is absolutely normal. Think about it, chances are the job is gone, the transport is gone and the independence is gone. The senses are screwed up and the sense of touch is likely gone or flaky.

I will cry if you ask me personal questions. Just don't get personal and I will be perfectly normal. Stay resourceful and carefully approach personal issues. Personal issues, will revolve around my hygiene, my ability to recall things from minutes ago, days ago, but years ago I may be fine. Short term recall versus muscle memory. It's a thing.

I need solutions not open ended questions. If I haven't had a meal in large amounts of hours, don't ask me if I want a day old pie from a service station. Except a slap outside your head and think about nutrition. Don't huff and puff but get logical! Always ask multi choice questions - never let me away with a yes or no. Dig deeper. I'm worth it.

Oh, and that's another thing, the memory takes a back seat and forgets the wise solutions that have been mapped out, I need it written down with a schedule that I can refer to, because it's hugely important to me, and I need to know it's all being sorted out, and I will feel so relieved!

I place all the important info on my fridge, then in my diary. Update them for me, with solutions for - you guessed it, I don't remember what's wrong - so will happily think all is well - until someone points out to me it isn't, then I become AGAIN an emotional mess. Surprise!

I am well aware of my new many and varied limitations. So lets get the basics sorted and written down, like the first huge concearn about money issues: will this happen to me again, do I need a wheelchair what NEXT?

Me crying is like Armageddon. It never NEVER happens - well that was before the stroke.